13 hours ago
Monday, November 2, 2009
Day Three...Emotional rollercoaster begins
Dads turn again. Just sitting here listening to Kyles football game, eating a bowl of cereal from my favorite nurse on this floor. Im not going to run down anyone here, we'll just say everyone is allowed a few mess ups...you dont learn a lot unless you fail here and there, just not excited they had to screw up taking care of my wife.
Anyway, enough sobbing about that, we got to see a glimpse of some ups and downs we're going to go through as time goes on. We started out the day very excited because Melanie got to get rid of her ventilator. She also started to be fed milk. The morning and early afternoon was really going great! We were very excited.
Then....the rest of the story. Just before Grandpa and Grandma Westra left tonite, they had to undo the C PAP (I believe thats what its called. I dont have a very good idea what it does, we'll just call it a big improvement from the ventilator) and put her partially on the ventilator. It was supposed to be a mix of the two. Then, when I got back from the airport, we went downstairs with a few friends, and the nurse had a bit of a sad look on her face. She was supposed to leave at 7, but it was really close to 8. She said her oxygen levels had dropped dramatically, her breathing had dropped, and everything that had improved throughout the day had totally reversed. They had to put the ventilator back in completely (no in between), however it is through her nose now. When they put that in, her feeding tube came out, so they had to put that back in. After that, she puked up everything that was in her stomach, so we couldnt tell if she had eaten anything tonight. So...back to where we were at yesterday (HEY KYLE!!!!!!!!!! NICE JOB KEEPING YOUR HANDS UP AND KNOCKING DOWN THAT PASS WITH ROUGHLY 2 MINUTES LEFT) sorry, where was I.
So tonite was a little different. Nicki got to do the Care Time tonight. She was great. Melanie however, was not a great fan of her nurse tonite....and she scared her mom and dad! Let me just tell you a few things that I am not a fan of that happened. So the nurse was sucking out mucus, and she didnt like it. So the first thing she decided was..."Im angry, so Im gonna do what any premature baby my age would do, and that is stop my heart from beating...for a bit". Simple logic would tell you that this child didnt like that so we probably shouldnt do that again....However, the nurse decided to test insanity..and..did it again. Result? Minor differences, like the heart stopping, oxygen levels tanking, and blood pressure going down to bad levels...and a mother in tears. So...after the bagger thingy came out to get her going again, Im thinking to myself, she cant possibly be thinking of doing that again...How many times does someone need to see a near death experience to know this isnt working...APPARANTLEY 3!!!!!!!!!!!!!!!! YES, THERE IS A NURSE DOWNSTAIRS THAT I AM NOT A FAN OF NOW. HELLO!!!!!! MY KID HATES WHAT YOU ARE DOING TO HER!!!!!!!! STOP IT!!!! yeah, she did it again...same result.
Anyway, enough of that story. The night ended in a lot of tears, but it made us much more aware of our surroundings. It made me ask questions of our neighbors in our 8 child cul-de-sack. What I found, is that even though we go through this trial, many people have it much worse and we need to count our blessings. For instance, our friends Brady and Paige across the street (5 steps across the isle, one to our right, and one to our left) are twins born at 1#6 oz and 1#10 oz were put on a much more intense machine than a ventilator. It literally shook their bodies trying to make them breath 100 breaths per minute. And then, there is little Levi, just to the north of us (5 steps toward the back of the room) had 2 other siblings that didnt make it. Hes the only survivor of 3 and hes had a lot of struggles. He was on the ventilator for at least a month before he got on C PAP. Then, there are the new babies that continue to find their way downstairs...a new mom with tears in her eyes wondering 'what just happened'? One minute I was pregnant, and the next minute Im having a child way to early. Lots of tears in this floor, but a lot of new freindships being made...everyone their own circumstance...everyone knowing the shear terror the other has been going through. We know we're a long ways from being in the clear, but we also know that this hospital has all but mastered what they do with their infants. A great amount of peace again sits over me tonite knowing God is in control...Have a good night, and thanks for the prayers. Cya tomorrow.
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8 comments:
Wow... what a day! I am definitely deep in prayer tonight, as it is a wake-up call for sure! Thanks for the update Jeff... I love to hear how things really are. Love you all! {give Nicki an extra tight hug for me tonight!}
The roller coaster has started, huh? This is going to be the hardest part for you guys to handle. Remember, like you said at the end, Jeff ..the nurses are specially trained for this. They know what they're doing even when it so makes us want to cry or scream at them. You guys will get adjusted to this too but it will always be scary. Remember, like you said again, Jeff, that God is in control at ALL times. Love you guys and continually bring you before His throne of grace. May He give you the grace sufficient for each day. Looking forward to seeing you all.
Sorry guys, thought I knew how to do this but guess not. That was my "anonymous" comment. :)
Hi you two. I just found out about your precious little Melanie. What a beautiful little girl she is! A definite gift from God. This is an extremely emotional time for you I'm sure. After having our youngest at the NICU for 69 days, it touches my heart to read your words...those of honesty and those of pure emotion for the struggling roller coaster you are going through right now. If I can give you any advice, I'd love to! We have friends who are still up there with their little ones too. Make contacts with others. It keeps life in perspective a little. And, grab ahold of your one constant - God! Praises for great times and deep cries of pain in the hard times. I know those. But, God will be your strength even when you don't feel you have any! Also, ask a LOT of questions! Find out why they do what they do with your little girl. She's in great hands! Say hi to Doctor Ben and Doctor Gelfand for us! I'll try to send a few nurses your way to say hi's too. OH, my heart is there for you and I wil pray for Melanie and for you and your family daily! Lots of loving hugs - Sue Nykamp (used to teach with Nicki - Sue Eding) and boys!
Oh yes, the emotional roller coaster...we can identify with that, although from the grandparent's point of view. It's very difficult to see your little one go through these things, makes you feel helpless. But don't ever forget our Heavenly Father is in control and loves all of you more than you are able to love Melanie. He is working all things according to His perfect plan and that plan is for your and Melanie's good no matter what it looks like to you. His hand is Almighty and the one place that we can leave everything in complete confidence...a wonderful comfort when He leads us in winding up and down paths like He is guiding you on right now. We're thankful that this is your confession, too. We continue to lift you all up before God's throne of grace praying that He will sustain you and give you peace and contentment in His way with you.
~Cindi DeJong
Our prayers are with you in this long and trying journey. Cast all your cares on Him in whose hands are today, tomorrow and eternity. If you need anything a meal, someone to take care of the girls or anything else just let us know.
Wayne,Sarah, Connor & Erin Courtney
Hello Nicki, Jeff, and family.
Melanie is absolutely beautiful! I will continue to keep Melanie and your family in my thoughts and prayers. Remember to take it one day at a time and to take a moment to celebrate each day.
Best Wishes,
Julie Misner BSN,RNC:OB
Labor and Delivery
I can't even hold back the tears, how everything that I just read brought back so many memories for me!! Our daughter was born at 26 weeks also, 2 lbs 3 oz, nearly 3 years ago!
You have learned already how difficult it is to have a premature baby in the hospital and it is such a helpless feeling at times! Continue to have faith and know that God will help you through the ups & downs!
Please write if you have any questions!
Dawn (Ver Meer) Traviss
detraviss@gmail.com
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