Sunday, November 15, 2009

Harder Day

So I learned a very valuable lesson today...always make sure my phone is on. Last night my phone shut off due to a dead battery and I forgot to turn it back on. This morning while getting ready for church, Jeff called to check on Melanie. Nurse Jane informed us that one of the Dr.s left a message for us on my cell phone...and that Melanie was being put on a Jet Ventilator!!! So, our plans for the day quickly changed. We brought the girls to my parents and headed up to the hospital. By the time we got there she was starting to settle down from being intubated (sp?). Jeff had a whole new set of machines, tubes, and numbers to learn about. The respiratory staff did a great job of explaining everything to us and answering our questions. Thank you Mark. So the question everyone may be asking is why? Right? Well, that was our struggle the whole way up to the hospital. Why did she have this set back? Well, it seems that the pneumatocells (SP???????) in her left lung were slightly larger and also causing more stress on her good lung. We do not want these to grow. They think they could be growing because of the pressure from the CPAP. So they put her on the jet vent which is much more gentler on her lungs. The problem with the this vent is that they have to intubate her which can have many side-effects. However, in this situation it was the best choice for her.

The good side...we get to see her precious little face again. We can see her dark, fine, hair. We can see her nose how it should be, not covered with a seal from the CPAP. We can see her eyes as they are supposed to be, not squished up and swollen from the seal on her nose. We can see her chin without a chin strap holding her mouth closed! We are able to see her as Melanie...the little Melanie God created her to be.

The bad side...she is back on a vent. Something we don't want her to be on. They said she will probably be going back and forth from this vent to the CPAP. This vent makes her breathe 360 times per minute. On the CPAP she was breathing an average of 60 times a minute. Jeff did some math, that's 20 breaths a second!! When you put your hand over her little chest (or legs, or hold her hand) you can feel her body vibrating. If you watch closely you can even see her little chest vibrating with your own eyes. For those detailed people reading this; Jeff will post later about how the air actually works (never thought I would say that Jeff would give the details). Another thing that wasn't as encouraging is the fact that these pneumatocells are more rare. They only see a couple cases of them a year (2 out of 2600ish preemies). Which means they don't have as much experience in treating them. It appears Melanie will help out with that situation a little.

Melanie's primary Dr. will back tomorrow (he's been at a conference this past week) and we are very anxious to hear his take on things. We are also wondering if he will decide to do the heart surgery now that she's on the jet vent.?? We'll have to wait on the Lord and see what the next couple of days will bring. For now, we are so thankful that we have a "feisty" little girl! We are thankful that she is not sicker then what she is....for there are many other far worse things she could be battling right now. We are thankful for the staff in the NICU, they are AMAZING!! We are thankful for the strength God has given Melanie to this point. She is a fighter! We are thankful for the emotional (and physical) strength God has given us to this point. We are thankful for the grace to make it through each day. We know it is only through the grace of God we have come to the close of this day and look onto tomorrow. And we are so very thankful for all of our friends and family that are helping us out in so many different ways. There is not a day that goes by without an act of kindness or an encouraging message, and we know there are countless prayers being said. You are amazing people and we thank God for all of the blessings he is giving us through you! Pictures tomorrow...promise!!

13 comments:

Unknown said...

Jeff and Nicki,
Sorry to hear about your set back. We had an awesome sermon tonight on casting our cares on I Peter 5:6,7 Humble yourselves therefore under the mighty hand of God, that he may exalt you in due time: Casting all your care upon Him for he careth for you. Look up (you have probably heard my father-in-law say that) it is the only place we can find comfort. Keeping you in prayer.
Kevin and Leesa Van Overloop

Jeanine said...

Keeping you all in our thoughts and prayers! May God continue to give you strength anew for each day.
Love
Jared and Jeanine

Anonymous said...

Jeff and Nicki

Leesa is right we did have a great sermon tonight. You might want to get the tape. We all have our burdens to bare, but I did think of you tonight when he was preaching.

Sorry little Melanie had this set back. We keep your family in thought and prayer.

Bern and Marcia TB

Renee said...

Continued prayers for all of you.
With Much Love,
Randy and Renee

Dawn said...

Sorry about the set back today. We will keep you in our prayers! I know previously you had mentioned apprehension over the PDA surgery and that some of the nurses have eased that for you a little. IF surgery still is in the future, the nurses are right, the PDA ligation isn't as scary as it sounds. Olivia had it also and did very well. The scars on her back from the surgery and her chest tube are the only physical reminders she has of her prematurity now!
Hang in there!! God Bless!

Anonymous said...

Jeff and Nicki~
Hope your night goes better--we continue to pray for you and your family! Just to pass along a smile: Carson prayed for us today after lunch and he prayed for your little baby up in the hospital and that she gets enough air to breath. He then prayed that we ALL be thankful for enough oxygen everyday! You have many prayers being offered up--from young and old!
Corey, Brenda, Carson, Laelle

Anna Van Den Top said...

Jeff and Nicki,
We are still thinking of you guys every day. So sorry to hear about the setback and we will continue to pray for you. Kade was on that vent for awhile too. It definitely is a scary thing to see but also amazing at the things they can do for our little ones. We pray that God will continue to give you strength for each day.
Derek, Anna, Emma, and Kade
Van Den Top

Unknown said...

We continuously think and pray for all of you. Sorry to hear about the setback, but I know God will help you all through it. *hugs*

The Witter Family

Anonymous said...

Jeff and Nicki,
Praying for you all this very moment. God's blessings and peace.
Lynn, John and Kids!

Erin Wassink said...

i know it seems to be a set back but the jett vent is super gentel on the lungs. if it helps her left side rest and get stronger it will be so good for her. hopefully soon she'll be able to go back to regular cpap.

praying for you guys during this trial of your lives.

erin wassink

Anonymous said...

Catching up on your posts after coming back from Colorado. Keep hangin' in there. Our prayers are with you all.
John

Anonymous said...

You are all in our prayers. We love you!

Michelle, David and the boys

Anonymous said...

So sorry to hear about Melanies set back. Thank you for the pictures, she is a beautiful baby! You are in our thoughts and prayers.
Jodi